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My friend, you have been to hell and back these last few weeks. I cannot begin to imagine what you have been through. Never ever allow your thoughts of being a bad mom get into your head, you are a wonderful mommy- you have put everything aside and stayed in hospital with Craig and been there for him every day and night...and that being a working mommy with other commitments! You are doing the best that you can under the circumstances and for that you are the best.
My sincere prayer for your family is that they do get to the bottom of this. It's only natural to think the worst.
We are here for you, if you need washing done, food made (only if you promise not to judge as I am no chef lol) and to support you in whatever way we can.
I'm not a medical expert, but maybe they could test him for an auto immune disorder, my SIL has CVID and my mom has lupus, and they have very similar symptoms, just a thought.
Wishing him a speedy recovery and answers for you!!!
Sending lots of love, positive thought and energy and hugs you way, no parent or child should have to go through this!!!
Thank You Thank You
You ladies are amazing, and all the support is really cheering me up.
You guys are AMAZING
Michbi, I went to google CVID. and I am definitly going to ask our Paed about it.
Thank You so much.
There are so many things that it can be that it is so difficult to test for it all.
Yes, my poor boy was admitted again on Tuesday afternoon.
I took him to a different paed in the morning to get a second opinion aaround everything going on
Apart from his crappy personality, and failing to pic up that Craig at that point was rather ill. He did manage to agree on all the findings thus far. So at least I have further faith in our paed.
I took him back to creche after the appointment, and went back to work. The afternoon when I went to pick him up, his eyes were so swollen, and full of green stuff. And things were coming out his ears. So I phoned our paed who then met us at the hospital. Ear infection, eye infectio and upper respiritory. And he really battled to breath. And at that stage he had not slept siNce 10 the previous night (this was 17:00.
She immediatly admitted him, and took MORE blood.
He now has rsv AGAIN, and a scary bacterial count AGAIN.
The tests they have done so far are all negative. She is taking more tests tomorrow.
When the hospital coffee shop staff start bringing you free coffee to the ward, you must know you have been spending to much time.
So we wait. It is so frustrating.
We have not even told the families that we are back. They all stress so much, and it just creates further pressure on us.
I am lucky to have a fantastic company I work for, who has ones again told me to take as much time of as needed. Count so far this year for Craig being ill. 9 weeks. So it does help to not have that stress.
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